Ohio Department of Health seeking stakeholder input

The Health Policy Institute of Ohio (HPIO) has been commissioned by the Ohio Department of Health to gather stakeholder input for the Maternal and Child Health (MCH) and Maternal, Infant and Early Childhood Home Visiting (MIECHV) five-year assessments.

You are invited to complete an online survey (5-20 minutes depending on how many population groups you select) to identify the greatest needs for one or more of the following five population domains in Ohio:

  • Maternal/women’s health
  • Perinatal/infant health
  • Child health
  • Children with special healthcare needs
  • Adolescent/young adult health

The survey will remain open through Tuesday, December 4th. Thank you for your input.

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Are you a good listener? Do you care about the wellbeing of people with Developmental Disabilities?

The Ohio State University Nisonger Center is looking for individuals with developmental disabilities and their family members to be NCI interviewers. Interviewers will conduct face-to-face conversations with Ohioans with disabilities for the National Core Indicators (NCI) Adult in Person survey (www.nationalcoreindicators.org). More information

To apply online go to: https://www.surveymonkey.com/r/NCIOhioapplication

If you have any questions please contact Anna Sigman at 1-888-685-0984 or Annamarie.Sigman@osumc.edu

Caregiver Perspectives on Transitions Project, Seeking Feedback

Are you a parent or caregiver of an individual age 12-30 years living with a complex neurologic condition who is not expected to live fully independently in adulthood?

CNF’s Caregiver Perspectives on Transitions Project is interested in your experiences with different aspects of transition to adulthood for children/young adults living with complex neurologic conditions.

Through online focus groups (conducted earlier this year) and a survey (available now until October 8), we are exploring and highlighting medical transitions, as well as transitions related to community-based supports, residential services, and social/recreational supports.

Learn more about the survey here

Registration is now open for the 2018 Candidate Forum on Disability Issues!!

The Ohio Candidate Forum on Disability Issues will provide a format for the candidates for Ohio Governor and U.S. Senate to inform the disability community about their positions on disability-related issues/policy. Engagement with our elected officials about disability-related issues is important. It impacts policy matters affecting approximately two million Ohioans with disabilities, at least 13% of our state’s population.

When: Thursday, July 26, 2018, 12:30 – 4:30 p.m.

Location: Ohio State University Fawcett Event Center, 2400 Olentangy River Rd., Columbus, OH 43210

Moderator: Mr. Alan Johnson, (Retired) Columbus Dispatch Statehouse Reporter

Keynote: John D. Kemp, Esq., Life-long advocate and co-author of ADA.

The Forum is free but you must  register here

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SURVEY PARTICIPANTS NEEDED – getting and using health insurance and health care services

The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) is looking for adults aged 18-62 with disabilities to complete an online survey about getting and using health insurance and health care services – the National Survey on Health Reform & Disability.

To take the survey go to:  http://bit.ly/disabilityhealth

Why? We want to know how the Affordable Care Act (ACA) is affecting your life. If you have private insurance, insurance from an employer, Medicaid, Medicare, or no insurance please take the survey.

Who? Adults ages 18 to 62 with any type of disability, chronic health condition or mental illness.

How? The survey should take about 20 minutes to complete and your responses are anonymous.

During the week of May 27th – June 2nd the last of 2 drawings to win a $100 gift card will be held. The online survey is fully accessible for mobile devices and screenreaders, but if you prefer to take the survey over the phone or have any questions about participating, please call toll-free 1-855-556-6328 (Voice/TTY) or email healthsurvey@ku.edu. For more information about CHRIL go to: www.chril.org

Helping a First Responder by Utawana Leap, Lianna’s Mom

One day in kindergarten, my daughter’s positioning stroller tipped over in gym class. Since Lianna has no self defense reflexes, she hit her head on the gym floor.  I was called immediately and arrived at the school in less than 10 minutes. She had a glorious goose egg on the middle of her forehead.

As a precaution, a teacher who was also a volunteer EMT thought it wouldn’t hurt to have her checked out.  At that time, to be seen promptly at the local hospital, you had to arrive by ambulance. So the teacher/EMT personally called our local life squad and we were transported without lights and sirens so as not to scare Lianna or other students.

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